Remember
the Brothers Grimm Fairy Tale “Hansel and Gretel?” If you recall, when the family treks into the woods, Hansel
takes a slice of bread and leaves a trail of bread crumbs for them to follow
home.
As we age, memory
fades and we would do well to arrange for a similar trail of breadcrumbs… to
get back to the story from which we’ve drifted, to get back home from an errand
which has placed us on an unfamiliar road, or to get back the elusive memory we
are struggling to remember.
In
her article “The Transformative Power of
Memory,” Sarah Greydanus
gives
us a glimpse of why we cling to our ability to remember. Memory, she posits, is the way we understand
the previous chapters of our lives, and does much to determine how we see
ourselves and our world.
Memories
can preserve wholesome and precious times, which become treasures to enrich us
in the future.
“On the most basic level, our good memories
are important because we should appreciate our blessings. Someone who has
forgotten the beauty of his past is much poorer than he could be.”
”The fortifying power
of good memories is especially necessary when the present is grim… memory of a
better time may indeed save him, reminding him that life can be better and
encouraging him to keep hoping for a better future.”
When
I began to investigate the concept of fading memory, what I understood about
this phenomenon is that each person I know clings to the person he/she knew him/herself
to be. The beginning of losing that
identity seemed to me to be the point at which fear can, and often does,
overtake all emotion thus rendering irrelevant all rationale.
But
I wanted to learn more. I asked an
artist friend of mine, whose heart is as big as her talent, about her Sunday
volunteer work. She ministers to
dementia patients through art. She
recounted her observations through stories of the patients to whom she so
lovingly tends. I include them in their
entirety, as their witness is more powerful than any medical explanation or
textbook outline.
They know their
memory loss acutely. It is memories that make them who they were at
one time, and who they are now. Their
memories give them their identities. They are very anxious that I know who
they were; it is important to them that I understand exactly who
they have been in life, and to not see
them as they are now. They know acutely their aging process, and,
although they accept it, they plead for me to see them as they were in the
earlier part of their lives. For my part, I ask a lot of questions about
their lives as I work with them. They like that.
One woman in
particular, Barbara, is very hard on herself. She is 87. She was quite artistic
as a younger woman, and has the walls of her little apartment adorned with her
paintings. Now, suffering from palsy and old age dementia, she can barely paint
anything. I often hold her hand and guide her as she works. She gets SO FRUSTRATED with herself, and is
constantly putting herself down for her inability to paint.
I listen to her
stories about her paintings from years past, listening to the same stories over
and over. And I allow her to vent; she is disgusted with herself now when the
brush and paint won’t obey what she wants them to do! I soothe her and try to
spin a positive, of course.
Her ability to paint
well in the past gave her an identity. She was an ARTIST! She has
lost that, and yet doesn’t want to be defined by her abilities (or lack
thereof) presently. She feels the loss of her identity in a deep way. It is
the loss of herself.
Basically, that is the
underlying theme in what I have observed in my little gaggle of attendees. In a
sense, the years have robbed them of the very essence of themselves, and they
are physically and mentally reduced. They know it too. Their bodies no longer
do what they would like them to, and their minds have memories that come and
go. They experience a lot of frustration about that.
Another lovely lady,
Janet, is a sweet and tiny Japanese woman who escaped being in the infamous
internment camps because her father was a soldier in the US Army. She wants to
talk about the details of her past life, of who she was, and she looks for a
connection with me as she speaks, wanting me to see her, not as she is now, but
as a younger woman and all that she accomplished. It is important to her that I
see her as a peer, someone just like her, who lived a life and still can relate
to me. She has begged me to come to her room after the sessions. (Almost all of
my students want me to go to their apartments. And I go, because it means a lot
to them.)
I went to her room
once. She wanted to show me her wedding kimono. GORGEOUS! That is a work of
art, and probably worth tens of thousands. A museum piece. That kimono is a
link to her past. She worries that her daughter won’t take it after she is gone.
It is a part of her, a part of her history. She wants people to care.
Pauline is my age,
but lost her physical capabilities and some mental cognition due to a stroke at
age 43. Now she is a quadriplegic. (She can move one hand somewhat.) It is important
to her that others see her as still accomplished. She comes every session and
tries her best, and has carved out a niche for herself as quite a serious
artist, in our little group! Due to the stroke, she has some trouble with her
vision, and, as I said earlier, some cognitive issues as well. She lost her
former life, but has carved out this new one. She is quite remarkable.
Al is a retired Army
sergeant. His memory fades in and out. Interestingly, all his paintings have
something to do with veterans: the landscape project I present morphs into a
veteran’s cemetery with tiny American flags all in rows, the seascape painting
that I am teaching becomes a vista with ships bearing the American flag, and so
forth. He proudly describes stories of
his past life in the Army, who he was, and what defined him. Now I always greet
him as “our own private American hero”, and I always thank him for his service.
He wants to be remembered as he was. And appreciated for that. Not as he is
now. He is 91.
There are stories for
each of them!
Love them
Each
of us has such stories as these within our own circle of family and
friends. We may feel fear in trying to
approach, or even live with, their declining mental faculties. So how do we cope? Do we allow fear to paralyze us and turn our
attitude negative? After all, aging is a
relentless reality. We are on a
one-directional march with our contemporaries which can define us like nothing
we have ever experienced before. The
mirror does, in many ways, go from friend to enemy. The clock and the calendar are one-way
tickets to a future where vitality ticks away and health takes unexpected,
often unpleasant, twists and turns. And then we begin to forget. Occasionally at first, more frequently as
time passes.
We
can easily anticipate forgetfulness, and actually assume the challenge of
dropping breadcrumbs, or reminders, to enable our friends. We can show them the same patience and
compassion we would want to be shown. Because I know I would rather hear
someone I love say “I will help you remember” than “You are forgetting!” or
“Did you forget that again?” or “I’ve told you that already!”
We
have all heard sharp, impatient and frankly unkind comments directed at a
forgetful individual. As bystanders, we
can watch the heartbreaking facial expression of the person suffering scorn for
nothing more than forgetting a minor detail, and likely causing the angry
companion an equally minor inconvenience.
Let’s
be better than that. Let’s put ourselves
in the place of the person struggling to remember by avoiding the circumstance
where they will fumble for that detail.
Let’s use humor when memory fails.
Let’s extend a kindness, a warm smile or an understanding touch. If we can imagine the layers of benefit that
memories can bring, we can also intuit the depths of torment that memory loss
can cause.
I
am grateful for the wonderful lesson I learned from my artist friend’s
generosity of heart. I intend to reject
allowing my loved ones to go it alone, and to seek instead the courage to find
ways to connect. Because I believe that we are better when we face our fears
together. We don’t have to just watch
our loved ones suffer memory loss… we can equip ourselves with the most loving
tool we can offer. Breadcrumbs. To a creative artist who realizes that her
task is less about conferring her talent than extending her compassion, those
breadcrumbs take the shape of a guiding hand, a listening ear, and a loving
heart.
How
creative can we be to fashion our own breadcrumbs, as individual as the loved
ones we encounter? Let’s find out. Let’s
gather some breadcrumbs for the next opportunity. I think we’ll find the gesture will be
received, appreciated, and never forgotten.
I am weeping! Alexis, you are SO SO good at writing. Amazing actually. You have woven exactly my thoughts into a concise and powerful essay. God has given you a powerful and beautiful gift, one that can be a weapon or can be a balm. A weapon in words that can defend or can stop an untruth; a balm and healing soothing words for those who are in need. You are also a teacher: your words teach!
ReplyDeleteA friend once told me that in Buddhism, the two highest states of being are being an artist or a teacher. Nice to think about! You are definitely an artist with words.
I absolutely LOVE the quote of someone saying to another, “Let me help you remember....”
Boy, do I love that. So filled with compassion. It takes extra time to help someone remember, but then, isn’t it true that one facet of generosity is giving your time lovingly to another. I need to work on that facet, and maybe all of us do, too.
I absolutely LOVE the article you referenced. (Sarah Greydanus) I need to read that for myself. Thank you for that reference. “Someone who has forgotten the beauty of his past is much poorer than he could be.”
And you are sooooo right—- humor is a great tool to use when interfacing with dementia sufferers. I discovered that one thing most people with dementia loss do not lose is their sense of humor. I have used humor a lot with my gaggle of budding artists. I tease them A LOT. Most of them are good with it, and I quickly learn who is not open to humor. But for the most part, they can be really funny, in poking fun at themselves.
Thanks again, Alexis.
You are a true treasure in my life.
What a gift for understanding and writing you have! I know that you said it would be expensive to publish your writings, but hope that you will have the collection bound. (I still think you should be in the running for POPE!)
ReplyDeleteThanks for this, I sent it to the kids. My daughter-in-law is struggling with her mother’s forgetfulness.
ReplyDeleteI need to be more patient.
Thank you. I shared it with my special former student!
ReplyDeleteThank you, Alexis.❤
ReplyDeleteThe topic is remarkably relatable to my life. I was at a family reunion in the community room of the skilled nursing center where my Mom lives. Mom has dementia and her memory continues to erode, so very gradually. She knows who her children are and her grandchildren, but she's starting to confuse which grandchild goes with which parent. I have been divorced from my kids' dad for 20 years and it really threw her off that their dad wasn't there. For her, a piece of the family puzzle was missing and she found that confusing.
ReplyDeleteSpending time with her requires that we live in the moment. What we did in the morning is forgotten by the afternoon. So what. If we live in the moment, she is delightful and delighted to have company. Her memory loss is not her fault, there's nothing she can do about it and it makes no sense to scold someone for their memory lapses. And, as you said, nor it is kind. So, we answer her repeated questions over and over as if it is the first time we heard it.
She has a journal she writes in daily when something happens that she wants to remember. She enjoys reading the entries days and weeks later - over and over again. These are her breadcrumbs!
Reality is breadcrumbs only help for a short time.....my mom and my aunt had dementia, my aunts' was different than my moms...my mom couldn't remember the present or near present, but did the past. My aunt could not remember the past, but was aware of the present. Both were aware of what was happening to them...especially on the beginning. It is a horrible disease, no matter which form is there.
ReplyDeleteThis is so wonderful. Warm and witty and wise.
ReplyDeleteI’ve been paying attention to your metaphor of breadcrumbs. It keeps coming up lately.
(I’m even curious if it might be a metaphor for your compelling value.)
I’m reading your Breadcrumbs just before leaving to visit a woman who about my age is struggling with Lou Gehrig’s disease.
Thanks for giving me a lantern for the visit.
Great reminder of the importance of each and every soul, and maybe a test of us who deal with the aging to be patient, kind and compassionate. Even as they lose their “youth” and identity, they are so precious in their creators eyes.
ReplyDeleteAlways wonder why we tend to look down on those who don’t seem “normal,” old, poor, psychotic, sickly, and yet exonerate the rich, powerful, and famous. Your friend has my complete and utter admiration.
I loved this blog!! A lot to think about....it is so important to be considerate of others!!!!!!!!!!!!!!!!!!!!!!!
ReplyDeleteThank you.
ReplyDeleteThis is a wonderful piece. It’s a topic to which most people who are reading your blog can relate and gives sweet examples and suggestions, and reminders of how we can be more supportive. Not all who have memory loss ar so sweet, but that’s another issue. ❤️
ReplyDeleteBreadcrumbs is amazing. What a powerful message full of love, patience and respect. It is an awakening about humanity and the people we all carry within ourselves forever and the need to give and nourish who we are and who we were and to recognize this in each other.
ReplyDeleteGood essay with good thoughts.
ReplyDeleteThank you for this beautiful reflection. Such a simple thing to be kind…..I will remind myself of that today.
ReplyDelete